Resource Library p3

Medicare – Care Compare
Tool for comparing and evaluating hospitals, doctors and
clinicians, nursing homes, home health agencies, dialysis
facilities, and hospice agencies.

Medicare Coverage for Dementia Screening (Cognitive Assessment) and Care Plan Services

Medicare Fact Sheets and Booklets

Resources, including 2024 Medicare and You Booklet

Medicare Home Health Coverage: Jimmo v. Sebelius

Law stipulating that no improvement is necessary to qualify for home health coverage.

Medicare Outpatient Observation Notice (MOON)

Medicare Rights, Discharge, and Appeals Forms

Medicare/Centers for Medicare and Medicaid (CMS) Reporting

US Department of Health and Human Services-Office of Inspector General

Online Complaint Form or call 1-800-447-8477
For complaints involving healthcare fraud; quality
of care issues – healthcare facilities and agencies;
medical identity theft; etc.

Medicare Rights Center

Self-Advocacy Approaches for Residents and Family Members
California Advocates for Nursing Home Reform (CANHR)

Self-Help Materials for Medicare Appeals
Center for Medicare Advocacy

Legal and Advocacy
Information and Resources

LEGAL

Advance Health Care Directives

Downloadable form for each state from the

National Hospice and Palliative Care Organization

Advance Health Care Directives and POLST
Family Caregiver Alliance

California: Advance Health Care Directive

Fillable form from CA Probate Code

Carefull
Financial safety service that guards your money, credit, and identity from threats, thieves, and everyday money mistakes. "Carefull provides all-in-one financial safety, covering both outside threats and inside risks — backed by $1 million of identity theft insurance."

Horizon Elder Law and Estate Planning San Ramon

Julie Fiedler, Certified Elder Law Attorney

A law firm that specializes in serving individuals, families, and seniors by providing assistance with governmental entities and long-term care planning. The firm also offers services in probate, guardianship and conservatorship administration in the East Bay area and California.

Legal and Financial Planning for People
Living with Dementia

National Institute on Aging/National Institutes of Health

Legal Assistance for Seniors
No or low-cost services

Alameda County Legal Assistance for Seniors
Contra Costa County Senior Legal Services
All other counties in California

Myths and Facts About Healthcare Advance Directives

American Bar Association

POLST

Physician Orders for Life Sustaining Treatment

(forms for each state)

Recognizing and Reporting Elder Abuse
California Advocates for Nursing Home Reform

ADVOCACY

CANHR – California Advocates for Nursing Home Reform

Online Complaint Form or call 1-800-474-1116

Questions or complaints about all issues
involving elders

Community Care Licensing (CA Department of Social Services)
Online Complaint Form or call 1-844-538-8766
Complaints about facilities that serve older
adults and children

Five Tips for Collaborating with Healthcare Professionals During Your Dementia Journey
Teepa Snow

Health Insurance Counseling and Advocacy
HICAP agencies in each county are run by the California Department on Aging

For all counties in CA, Google HICAP + county; for other states, Google SHIP + county and state

HICAP provides free and unbiased community education, individual counseling, and advocacy to Medicare beneficiaries about Medicare, Supplemental Insurance, Prescription Drugs and Medicare Advantage plans, Long Term Care Insurance, Medicare Appeals, and Low-Income Assistance programs. HICAP is a volunteer supported program that helps Medicare beneficiaries of any age make informed choices and provides advocacy when their health care benefits and rights are threatened or denied. HICAP does not sell, endorse, or recommend any specific insurance product or plan. www.lashicap.org

HIPAA Privacy Rule

U.S. Department of Health and Human Services

HIPAA for Individuals

How to Be an Effective Advocate for Aging Parents AARP article

National Long-term Care Ombudsman Resource Center

Talking with Your Doctor: A Guide for Older People
A hard copy of this booklet can be ordered on the NIH/NIA publications site

C.A.R.E. Act
Caregiver Advise, Record, Enable

Law outlining support for family caregivers in most states

C.A.R.E. Act Wallet Cards
Downloadable cards and info for each state

Video Library

Caregiver Training Videos - UCLA Alzheimer's and Dementia Care Program

This site has informational videos on a wide range of topics relevant to caregiving. Subtitles in several different languages are available on most of the videos.

A Changing Brain

Teepa Snow – Positive Approach to Care™

Connecting Through Music (Teepa Snow)
Teepa Snow – Positive Approach to Care™

How Alzheimer’s Changes the Brain

National Institute on Aging

You’re Noticing Changes

Teepa Snow – Positive Approach to Care™

What’s the Difference Between Dementia and Alzheimer’s?

Trinity College, Dublin, Ireland

What It’s Like to Live with Dementia

Alzheimer's Association (personal story)

What Others Say About an Alzheimer’s Diagnosis

Alzheimer’s Association (personal stories)